RARE DISEASES

Amber Pharmacy’s Rare Disease Center of Excellence offers personalized patient care, access to needed medications and the clinical support necessary to promote medication adherence and compliance. Each rare disease patient is assigned a healthcare team. This team has extensive experience in treating patients with rare diseases and provides support for the clinical, physical, financial, educational and emotional needs of patients and their caregivers.

%
patient satisfaction with pharmacy employees
We supported over
patients in 2016
Over
years combined clinical experience

Amber Pharmacy is Here to Help

The challenges associated with living with a rare disease can be difficult for patients to manage. Our rare disease team is here to serve as your advocate. Amber Pharmacy’s enrollment and benefit coordinators will help you with your insurance coverage and will work with you to find the best way to pay for your medication. Personal care coordinators will remind you when it’s time to refill your medication so you receive the most effective treatment possible. At Amber Pharmacy, we’re always here to help.

Jennifer Howder
“Many times, a patient with a rare disease has been living with that disorder for a long period of time, without any available treatment options. I cannot think of many things that are more gratifying then getting to call a patient and tell them that not only is there a treatment for their disorder that is available, but that we will be working with them hand in hand to make sure they can get started on it, and utilize us for any questions or concerns.”

— Jennifer Howder, Pharm.D., BCOP
Amber Pharmacy Clinical Pharmacist

 

Frequently Asked Questions about Rare Diseases

What is a rare disease?

For a disease to be considered rare in the U.S., it must affect fewer than 200,000 people. There are 7,000 rare diseases currently identified. Most rare diseases are genetic, but they can also include infections, rare cancers and autoimmune diseases.

What is an orphan drug?

Orphan drugs are highly-precise medications that are used to treat rare diseases.

How do I manage side effects of treatment?

Depending on the medication your doctor prescribes, you may experience side effects. Medication can affect each patient differently. Amber Pharmacy works with patients to help manage any side effects that occur. It’s important to discuss any side effects that you experience with your pharmacist or doctor.

Each medication has its own special considerations and instructions that your pharmacist will go over with you. If you have questions about your injection technique, be sure to ask your pharmacist.

 

Rare Disease Resources

Refer a patient

We have extensive clinical expertise and experience working with patients with asthma. In all that we do we provide respectful, reliable, patient-centered care.

Get in touch with us

Amber Pharmacy is here to help with any inquiries. Visit our contact page to send us an email or give us a call.